I Am Celine Dion: A Heart That Refuses to Give Up

A review of the documentary film I Am Celine Dion, which takes an intimate look at the Canadian legend's journey with the rare neurological disorder stiff-person syndrome.

I Am Celine Dion: A Heart That Refuses to Give Up

Celine Dion’s life has been a testament to her unwavering spirit and unrelenting passion for music. Despite being diagnosed with the rare neurological disorder stiff-person syndrome, the Canadian legend continues to inspire millions with her courage and resilience.

A portrait of Celine Dion

In the documentary film, I Am Celine Dion, director Irene Taylor takes an intimate and unflinching look at Dion’s journey with the disease. The film is a celebration of her spirit, rather than her professional achievements. It’s a deeply uncomfortable watch, but one that is necessary to understand the pain and grief that Dion has been living with.

The film opens with cellphone footage of paramedics rushing Dion to the hospital after her entire body stiffens up like a corpse. This is a frequent occurrence for her, and although it’s difficult to watch, it’s a testament to her bravery that she has chosen to share this with the world.

Dion’s pain is not just physical; it’s also emotional. She has lost her ability to sing, which was the conductor of her life. In one heart-wrenching scene, she breaks down completely, unable to hit a high note. It’s a devastating moment, made all the more poignant by the footage of her old concerts that is interspersed throughout the film.

Celine Dion performing on stage

The film raises questions about the lines that documentaries mustn’t cross in their reporting of the truth. Is it exploitative to show Dion’s pain and suffering, or is it necessary to understand her journey? These are questions that the viewer must answer for themselves.

I Am Celine Dion is not an easy watch, but it’s a necessary one. It’s a testament to the human spirit, and a reminder that even in the darkest of times, there is always hope.

Celine Dion smiling, a symbol of hope